Rhino activities

In our Fisher Price Space Saver High Chair

I've been able to help Annabelle do a few more things in her rhino, so I thought I'd share so other people can hopefully have an easier time with their little ones.  

In the Rainforest Jumperoo

In the Rainforest Jumperoo

Wearing a small Halo Sleepsack at night,
brace underneath

Wearing a small Halo Sleepsack

Swinging in the
Fisher Price Papasan Cradle Swing

In our new double stroller:
Baby Jogger City Micro

rhino roll

Since we've been able to allow Annabelle more time out of her brace the last few weeks, she has really gotten mobile! 
She rolled back to front without her brace a couple weeks ago, and the next day, she did it IN her brace - I was shocked!

 
She's also working on her version of crawling, which looks more like digging, as she digs her head into the floor and kicks with her legs until she scoots to whatever object she is trying to reach.  She also rolls like crazy. 
She still isn't crazy mobile when her brace is on, but I'm thankful she's meeting more of her milestones. 
I had initially prayed that she wouldn't become mobile prior to her open reduction/cast placement so that she wouldn't get so frustrated and being unable to move, but it's such a joy to see her exploring and discovering her world.  The 6 weeks in the spica cast will be long and stressful - but they are only 6 weeks.  Only 42 days.  That I can handle.

one in, one out

A couple weeks ago I took Annabelle back to the Orthopedic Dr.  She had an x-ray (she's old enough now - no more ultrasounds!), and we got some reassuring news.  Her left hip is still in place, and looks good - Dr Olney is confident it will continue to stay in place, so she is now allowed 6-8 hrs a day out of her brace, and has no restrictions when out of her brace (except no Johnny Jump-ups).  I promptly put our Jumperoo together that night.  She's still more a fan of the Exersaucer than the Jumperoo, and I feel better about the Exersaucer because she can still wear the brace in it.  I still kinda baby that hip.

Her right hip is still dislocated, which we know and expect.  She'll have her open reduction in October that should fix it.

In the meantime, we're working on weaning her out of her brace, slowly.  She is also now doing physical therapy for her torticollis.  She's still pretty limited on her range of motion, and she detests the stretches we have to do for her.  I'm praying it gets easier as her muscles stretch out.  We have several sets of stretches we have to do 5-6x a day, for at least 5 reps.  So, all-in-all, each stretch 25-30 times a day.  It's a lot, but not that time consuming.  It's just painful to watch her screaming, but to know it's what she needs.  I hate seeing my baby uncomfortable.

Otherwise, all is well!

Babywearing with the Rhino Cruiser, part 2

I had posted earlier that the Ergo carrier worked well with the Rhino.  I've worn Annabelle in it a few times with her brace, and she sometimes will tolerate it, and other times won't.  It's really touch and go.  It's not quite wide enough for her leg span, and I think it sometimes cuts into her legs and makes her uncomfortable.

I found my ring sling, and decided to try her in that.  It's not the ideal carrier for long term wearing, but it worked well with her brace, I used a hip carry similar to how I carried Charlotte when she was ~10 months old.  Annabelle did well in it - I think we'll try this one again!

It's a double-layer Solarveil ring sling from Baby So Smart.  The lint is courtesy of me washing it with a load of towels and accidentally drying it.  This sling is awesome, I bought it for Charlotte specifically to wear her in the pool or shower.  You can scrub a baby right through the fabric with soap!  It also has some UV protection.  :)

our new normal and the answers to some FAQ

I haven't posted for awhile, but there's not much to update!

The last five weeks have been great.  Annabelle is doing fantastic, and we don't really seem to mind her brace at all.  SHE doesn't seem to mind her brace at all.  It's our new normal.  Baby in a brace.  We get some stares occasionally, and I'm always happy to answer questions for the curious minds.

happy girl

We've even managed to fit her in an exersaucer with her brace on, and she loves being in it.  (I doublechecked with the Dr to make sure it was okay, and they said sure!)  She's all about putting everything in her mouth, so having lots of toys at arm's reach is a plus for her :)

dangly legs!

*************
FAQ:

I've had a lot of questions asking after little Annabelle, so I figured I'd make a mass answer:

our tiny girl on the fourth of July

She is doing great.  We are weaning out of her brace, she is allowed out four hours a day, and she loves being out of it.  She is still a bit behind on tummy time stuff, as she still doesn't tolerate it well, but we're catching up!  :)

She *did* go in for her surgery, but while under the general anesthesia, they were unable to put her hip in place.  She will have open surgery in October after she is 6 months old (the Dr won't do the open surgery on younger babies) and they will clean out the hip joint, manually reduce her hip, and cast it there for six weeks.  That *should* be her last surgery.

In the meantime, she is in her brace to keep her left hip stabilized, and provided it stays in place, she will only have surgery on her right hip, however, the nature of the spica cast is to cast both hips.

we are home

This morning didn't go as expected, but as the day has gone on, I'm not as upset about it ... in fact, it's a bit more on the positive side than I realized ...

She went in for surgery ... anesthesia, the whole bit ... but ...

Dr Olney was unable to reduce Annabelle's hip ... (i.e. he couldn't get it to align, and her right hip is still out of place).  Her left hip is still where it needs to be and he said it looks good.
So ... instead of casting her today ... we are home.  She will continue the brace in order to provide support to her left hip, but we will wean her out of the brace.  She can now have 4 hours out of the brace a day.

This fall, when she is older, and her bones are more mature, she will have an OPEN reduction (instead of the closed reduction that was scheduled for today).  It is just like it sounds ... they will go into her hip ... clean out any tissue that is obstructing the joint and preventing it from aligning, and reduce the hip that way.  Check out this link for more info.
Afterwards, she'll be in the spica cast for 6 weeks, and then back to the brace she's in now.  No re-casting.  Just one surgery.   Hopefully, that will fix her hip. 

In the meantime, not having her dislocated hip braced will not affect the outcome.  Dr Olney says this ... he's been doing this for 20+ years ... he's the Chief of Orthopedic Surgery ... I trust him.  (okay, mom?)

Ultimate Goal:  Healthy Hips, full function.

They told us to expect her to be veeeeeeeery sleepy for the rest of the day, and she might have a rough 24 hours. 

I had planned to do a photo tour of our day ... (last photo of legs, etc...) but since that is irrelevant now ... I'll do a mini tour ...

Annabelle couldn't have any breastmilk after 1:30am.  She could have clear liquids (i.e. Pedialyte) until 4am, so I woke her at 3:30 and she drank 5oz.  She didn't really wake up, but she did drink.

Here we go!

scared Mommy, hungry baby

I'll be okay mommy, and aren't I cute?  Won't you please feed me?

Sleeeeeepy baby in the recovery room.  It took removing her IV (in her elbow at the bottom of the pic) to wake her up. She nursed after that.  They told us she might be very sleepy for the rest of the day ...

After arriving home ... my happy, happy girl.

She's zonked out now, and snoring ... hopefully the rest of today and tonight go well.

The wait is over.

I am so glad that today is here.
The building anticipation of the last four weeks is quickly coming to a finish. Over the entire weekend, I just wanted today to be here. I want the surgery over. I want to know that my baby is okay. I want to hear the good news that they were able to reduce her hip and she is in the cast.

Her surgery is scheduled for 7:30. We have to be there at 6:00.
Her cutoff for milk was 1:30, and for clear liquids (Pedialyte) was 4:00.
She normally sleeps from 9:30ish to 5am. I didn't wake her at 1:00 for a breastfeed (mostly because I went to bed around midnight), but I did pick her up at 3:30 for a bottle of Pedialyte. It took 30 minutes, but she drank 5oz. It was weird giving her a bottle.

She's snoozing away now - oblivious to the upcoming events for the day. I'm glad for that. I'm happy every day that this was caught early so that we can be on the road to recovery before she ever remembers it.

I've never prayed this much in my life. Right now I have an eerie sense of calm about me. I hope it continues throughout the day.